
I'm trying really hard to remain upbeat about all that is going on with my health. I really, really am. However, at some point the level of exhaustion just takes its toll and it is all I can do to function on a daily basis. I've now had three doctors tell me I should be in a wheelchair and at home unable to complete the basic chores required of a mother and employee. Yeah...o...k....like that is an option.
I went in for my 2nd iv iron infusion yesterday and it did not go well. It is truly too long of a story and one that I will not bore you with. However, the short version is that I did not get any pain medication and it hurt. H.U.R.T. The whole process was a drag and yes, I know it could've been worse.
During the infusion I received a call from my doctor that my surgery scheduled for May 13 had to be postponed because they believe I have a nickel allergy. Why does this matter? Apparently, one of the surgeries uses a 'device' with nickel properties. If I have a nickel allergy (unknowingly) I could go into cardiac arrest. Lovely, eh? So, when I went to my pre-op this week they asked if I had a nickel allergy. Not that I am aware of I replied. Do you have any reactions to rings, bracelets etc.? Um, does my platinum wedding set count? Um, yes, it does.
For those of you around me a lot, you have seen how awful my ring finger can get if I wear my platinum set for more than 3 days in a roll. That is why I alternate between my gold and platinum wedding ring sets. I always thought of it as an inconvenience but it turns out it may be more than that!
Believe it or not, there are only 2 doctors in all of Nashville who conduct nickel allergy testing. So, I have an appt on June 1 to get tested. IF the result is positive we will have to develop a Plan B for surgery which will be much more invasive with a much longer recovery time. I am praying the result is negative and we can move forward with Plan A which is a much faster recovery.
It really upset me yesterday because I am really, really wanting this surgery so that I can move forward in feeling better. I cannot explain how poorly I feel and I often feel like a failure or a weak person for having no energy. I'm not a "fun" mom, wife or friend at the moment. I'm probably not a very fun co-worker right now either. I don't like to draw attention to myself so even putting into words all of these emotions is tough for me.
I know that my health could be a lot worse right now. I do realize that, honestly I do. I don't want to complain; I just want to feel normal again. The doctors told me this health issue has been hovering and impacting my life for probably 2-3 years now. I believe it.
I'll keep everyone posted as to the results of the nickel allergy and new surgery dates. Thanks for the continued emails, cards and phone calls of support.
Good grief. You have every right to feel upset! Please keep telling yourself that this is not your fault. You are incredible just to make it out the door every morning! My Mom is the strongest person I know and when her iron went to these levels she had to be hospitalized. She thought she was dieing. Give your self props for everything you do get done and don't even think about anything else! Hoping for option A!
ReplyDeleteThanks, Stephanie! I need to remember your mom more often. It helps! Thanks for the kind words!
ReplyDeleteYou are such an inspiration to me! You are handling this all in such an incredible way. Know that I'm lifting you in prayer. Praying you can get this surgery done soon (no nickel allergy) and you can get this behind you. Blessings to you my friend!
ReplyDeleteJenn
Jennifer, You are too kind. It is ironic because I often read YOUR blog for inspiration. I appreciate you being such a shining light even though you are "deep in the heart of Texas." :- )
ReplyDelete